To evolve thyroid cancer care to its highest level of excellence by providing the most comprehensive and personalized treatment to patients over a lifetime.
We will accomplish this by maintaining a detailed record of all aspects of individual thyroid cancer patients' disease and treatment in a database accessible (by permission) to all care providers as well as patients.
We will vigilantly monitor individual records and analyze comprehensive data to identify risk factors and new treatment opportunities for all our members. We will alert patients to timely follow up assessments and relevant research findings.
Through this collaborative system, patients will receive the benefit of centralized medical data reporting related to their thyroid cancer treatment to enhance the efficiency and accuracy of communication between care providers through a HIPAA compliant system.
Established in 2010, the Thyroid Cancer Care Collaborative (TCCC) is a unique concept in patient care.
The TCCC is both a tool to record and monitor individual patient records and a rigorous and comprehensive approach to analyzing data and applying results to the unique and specific needs of each patient. This is accomplished through the observation and research of dedicated professionals.
Our professionals, under the leadership of Dr. Mark Urken, represent experts in the fields of otolaryngology, general surgery, endocrinology, medical oncology and nuclear medicine.
The Thyroid Cancer Care Collaborative is funded by the THANC Foundation. The THANC (Thyroid, Head and Neck Cancer) Foundation was established in 2003. An essential part of its mission is to support research to better understand the cause and progression of thyroid cancer and advance new therapeutic approaches to relieve suffering and enhance quality of life of patients.
The TCC's Updates on Ignyta's New Clinical Trial
Ignyta is coordinating a new clinical trial for TRK mutations, which are often seen in head and neck cancer patients. The TCC works to alert patients and physicians on relevant studies to identify new treatment opportunities for all patients. Read More
Gathering Medical Records Made Easy with the TCC
Ron Lieber took on the challenge of gathering all his medical records, soon finding this was an extremely difficult task. The TCC aims to address this issue, as medical records are uploaded to one convenient and secure location. Read More
Take Control of Your Records!
The TCC has recently launched a new feature: patients are now able to take control of their thyroid related health records and upload them to the TCC. The TCC aims to empower patients to become an active player in their thyroid health. Read More
Dr. Mark Urken Blog Post on Pathology Reports and the TCC
Dr. Mark Urken recently published a guest post on Mount Sinai’s HealthBytes blog, discussing what thyroid cancer patients can expect from a pathology report and how the TCC is a helpful resource for thyroid cancer patients. Read More